Oscar Watch ‘How to Survive a Plague’: From a Tale of Disease, a Primer for Empowerment

Oscar Watch 'How to Survive a Plague': From a Tale of Disease, a Primer for Empowerment

David France didn't set out to make a film about the AIDS crisis.  He didn't even set out to be a filmmaker.  On the afternoon before the Directors Guild of America Awards—for which he was nominated for his first documentary, "How to Survive a Plague"—France told me that the project (also nominated for the documentary feature Oscar) grew out of his feeling that a crucial chapter of the history of AIDS in America had been lost.  That story, he knew from personal experience, was one of activism and empowerment, one that had changed the United States forever.  France wanted to bring it back. 

"A note in a bottle"

An author and contributing editor for New York Magazine, France covered the science of AIDS as a young reporter living in New York City during the 80s and 90s.  As the years went on and he wrote about the advances that had taken place in HIV/AIDS research, France told me that he found the generation who had not grown up during the AIDS crisis lacked a knowledge of the early days of the epidemic.  The entire history of "citizen science," as he puts it—the story of how people living with AIDS educated themselves, spoke truth to power and secured the drugs that would save their lives—had been largely lost.

So France went back to look through the footage that had been shot during the formation of ACT UP, the AIDS Coalition to Unleash Power, a group of activists protesting what they perceived as a lack of competent, coordinated political action to fight AIDS.  On March 24, 1987, ACT UP staged its first demonstration at Wall Street and Broadway in Lower Manhattan, criticizing a lack of access for experimental AIDS drugs and calling for a national policy to fight the disease.  Seventeen ACT UP members were arrested for civil disobedience during the demonstration, shown in the first 10 minutes of "How to Survive a Plague."

At the time of ACT UP's formation, AIDS was ravaging New York's gay male population.  Unchecked by any medical treatment, the disease brought with a de facto death sentence.  France was the first reporter to cover the fledging organization, following its formation and growth into a powerhouse of activism. He knew the story from his own perspective, but as he reflected on it, he set out to understand it through the lens (both literal and metaphorical) of the activists themselves. 

Through the process of conducting this research, France realized that the only way he could tell ACT UP's story was as a documentary: the footage itself communicated the time in a way that no journalistic retelling could.  For three years, France pored over the work of 33 different videographers who had been working at the time—some of them journalists, some of them artists, and many of them activists. He combed through their footage, searching for shots of other videographers at work with their cameras in order to identify those people and attempt to contact them.  

The task seemed daunting at first: "In any frame," France told me, "50-60 percent of the people in it might not have survived."  But, remarkably, he succeeded to find some survivor and a library of footage for every single videographer but one, a man named Costa Hoppas whose striking, cinematic work is featured early on in the film and whom France calls "a human steady-cam."

"They knew no one else was paying attention," France told me, "and they knew that each one of them was likely to perish.  What they were creating were records—of what happened, of their lives.  It's like a note in a bottle.  It was so that years later, we would know that people didn't quietly die.  They fought like hell." 

Two very different activists

"How to Survive a Plague" would be a remarkable enough film if it simply presented a deep, comprehensive look at the footage of ACT UP's activism in the 80s and 90s.  But it isthe way that France frames his narrative around two of the activists in particular which makes the film richer, more nuanced and ultimately both haunting and uplifting.  

France's two central characters are Peter Staley, a former bond trader turned full-time activist, and Bob Rafsky, a PR executive who would become ACT UP's New York media coordinator. "There were people who more scientifically attuned," France told me, "who had better research minds: Spencer Cox, Mark Harrington.  But Peter brought a kind of politician's acumen.  He became the negotiator.  And Bob Rafsky was the person who always made it clear what the stakes were.  And he did it as a kind of a poet.  A poet and a politician seem to be the driving forces—for me—of what was happening at the time.  Their stories were the backbone of this narrative of AIDS treatment activism. 

As we follow these men and their community of activists, the sheer mortality that they and other AIDS sufferers felt in that time is presented with clear, un-dramatic simplicity.  At several points in the film, France includes footage of Rafsky with his daughter—first, when she is a young child, and later, when she is older and he is visibly, undeniably dying.  In several contemporary interviews throughout the film, when Staley is asked if he expects to die, he says "Yes," without a moment of hesitation.  France conveys this emotion with a sure but light hand—the film has no narration, instead letting the footage speak for itself.

But the true power of "How to Survive a Plague" is the fact that France's film is not the story of a crisis.  It is the story of the incredible humanity and empowerment that that crisis engendered in a group of people who looked squarely in the face of death and a government which refused to recognize AIDS for the public health emergency it was.  It is the story of a group of people who said, we must change this ourselves.  And in this way, it is a deeply American story—as France puts it, "a story of innovation and activism and the enfranchisement of the outsider."  Not only does this make the experience of watching "How to Survive" equal parts heartbreaking and joyful, it makes it, ultimately, deeply inspiring. 

"It was crazy, Nobel Prize-winning stuff," France told me, "brought to you by people who had never studied science."  When ACT UP began its activism, it often took up to 12 years for a drug to go from a scientist's idea to the medicine cabinet; years later, ACT UP had changed the entire experimental process, with that time period shrinking to just two years, or even six months in some cases.  Those advances—captured in this documentary—have radically transformed modern American medicine, and not just in terms of HIV and AIDS.  "Everything about the way that science and medicine are practiced," France said during our interview, "is a product of AIDS and AIDS activism. 

The ones who made it

The final image of Bob Rafsky in "How to Survive a Plague" is a newspaper photo with then-presidential candidate Bill Clinton.  During the 1992 race, it was Rafsky who made AIDS part of the campaign discussion.  He died in 1993, during the depths of the crisis.  As David Barr, one of the members of ACT UP who survived, tells France towards the end of the film in one of its few non-archival shots, "'93 to '95 were the worst years.  It was a really terrifying time.  And then we got lucky."

Barr smiles, ruefully, and then, in a reveal that is both dramatic and understated, France shows a wordless video montage of the ACT UP members featured in the film who survived the epidemic and are alive today living healthy lives with AIDS thanks to the drug therapies they themselves helped bring into reality.  (One of the activists shown in the montage, Spencer Cox, died last December in New York City.)

The final survivor is Peter Staley.  In a quiet, deeply poignant moment, he struggles to find the words to express himself before finally saying to France, "Like any war, you wonder why you came home."  But even for him, despite the great losses that he and his fellow activists endured, the story of ACT UP, it seems, is fundamentally a positive, life-affirming one.  "To be that threatened with extinction," Staley says in the film, "and to not lay down but instead to stand up and fight back—the way we did it, the humanity that we showed the world, is just mind-boggling."

For anyone coming to "How to Survive a Plague" without some previous knowledge of the period it chronicles—as I did when I watched the film—this under-stated revelation brilliantly underscores the hard-won successes that ACT UP and other AIDS activists accomplished.  Even more so, it reinforces France's central aim in making the film: it makes us aware that many of us were born into a different world because of what these activists did.

An opportunity for self-examination

Ed Koch died last week in New York City at the age of 88.  An often-irascible figure alternately maligned and revered through his three terms as mayor of New York, Koch oversaw the city's lackadaisical response to the AIDS crisis and served as the target of some of the ACT UP demonstrations shown in "How to Survive a Plague."  In the opening minutes of the film, asked at a press conference to addressP ACT UP's actions, he responds by calling them "fascists." When asked in reply whether the activists are simply exercising their rights as concerned citizens, he answers flippantly, "Fascists can be concerned citizens."

But, surprisingly, after Koch himself watched "How to Survive," he wrote a review of the film in the Westside Spirit (a tiny Upper West Side paper where he shared his views as an amateur critic) saying that the movie "should not be missed" and calling for the very activists he had railed against as mayor to be awarded the Presidential Medal of Freedom.

The day after Koch's death, France penned an article for New York Magazine about the former mayor in which he wrote, "Koch's failure in AIDS should be recalled as the single-most significant aspect of his public life.  The memories of all we've lost deserve no less."

When I asked France about Koch's death—and the mammoth 5,500-word New York Times obituary of the former mayor that originally omitted any mention of AIDS and was later amended by the paper—he paused for a moment.  "I want to believe that Ed Koch began in his last months to build a bridge between his own past and what would have been the right thing to do," he told me.  "To look back and reassess what he's done.  I do believe his review of the film was part of that."

But just as important as Koch's legacy—or perhaps even more so—France maintains, is the very fact that a conversation is currently taking place around Koch's death and his response to AIDS.  "If he had died a year ago, nobody would have been asking these questions," France said.  "The journey of the film from last January has allowed AIDS to come back into the discussion and look back at that time and actually declare who the heroes were.  For the first time, as an American culture, we might be able to swallow that history whole and call it ours."

That history is not just a lesson about how to survive a plague.  It's a lesson about how to transform the world—to make it more humane, to make it more just, and to do so with abiding humanity.

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Comments

NON HIV AIDS?

Chapter 33 of Hillary Johnson's: Osler's Web: Inside the Labyrinth of the Chronic Fatigue Syndrome (CFS) Epidemic is entitled "HIV-NEGATIVE AIDS."

Neenyah Ostrom's book "America's Biggest Cover-up: 50 More Things…CFS & Its Link To AIDS" cites as its #1 Thing: "Some CFS Patients May Be Non-HIV AIDS Cases."

Will CFS or AIDS ever make any progress unless we acknowledge this fact?

Published 11 times on 4 continents, my life w/ NON HIV AIDS:

w ww.ukprogressive.c o.uk/the-aids-like-disease-seldom-mentioned/article20891.html

Or simply google “NON HIV AIDS”

Doc lover

Excellent piece about a moving and important documentary. ACT UP is a model of social activism.

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